I think we as patients would often be better off with no medical intervention. Because not all "intervention" counts as healthcare. And yesterday, while I saw a doctor and received an exam and had some tests run, I wasn't cared for. And it felt like shit.
Read MoreWhen I stopped seeing my PT regularly, I tried to avoid coming back in for visits. I wanted to feel like I was actually healthy, and not relying so heavily on her help. This sounds silly now, but at the time, I hadn’t gone more than a couple of weeks without PT for years. But after seeing my health through this goofy construct for a few months, I began to understand that a much better goal is a state of “supported independence.”
Read MoreOthers’ judgment and treatment of me transformed my own beliefs about the legitimacy of my illness. I unintentionally invalidated my own body’s experience of pain, and I’d allowed those who chastised me for “taking advantage” to usurp my right to be treated decently outside the confines of my own home. In letting people like this dictate how I would care for myself while enduring unspeakable pain, I somehow lost ownership of my experience.
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”Inspire Santé”, “Hope Dealer,” and “Patients are people.” are all trademarks of ours. They stem from our founder Erin Jackson’s personal retelling and writing of her experience with pelvic pain. Words matter, and these are hers and ours. Don’t steal; it’s bad karma, and we’re trying to do good. If you use them, attribute them.
