My mother and I have been estranged for more than five years. While I was at my lowest point -- wheelchair bound, in excruciating pain, and suffering immensely -- she was critical and skeptical of my pain. That became intolerable, and my recovery ultimately required that I sever ties with her and work on rebuilding my emotional health and my strength. She's missed so much these past several years.
Read MoreI went from doctor to therapist looking for answers and nobody had them for me. It was devastating to say the least. Normal life had ended on some levels; I was a physically active individual who went from playing beach volleyball to not even being able to wash my own hair some days. I had two therapists, a chiropractor and a back doctor all managing my ‘recovery’ and I wasn’t getting any better, at all.
Read MoreOthers’ judgment and treatment of me transformed my own beliefs about the legitimacy of my illness. I unintentionally invalidated my own body’s experience of pain, and I’d allowed those who chastised me for “taking advantage” to usurp my right to be treated decently outside the confines of my own home. In letting people like this dictate how I would care for myself while enduring unspeakable pain, I somehow lost ownership of my experience.
Read MoreWhether the holiday itself is a “good pain day” or a “bad pain day,” it’s a “pain day.” (When you have persistent pain, every day is a pain day.) There’s anxiety leading up to that day, worrying about how you’ll feel, and there’s exhaustion after the holiday itself as you recover emotionally (if not physically too).
Read MoreWhen I got my first IUD, it was with a rotten doctor and no compassion.
It was December of 2010, I’d just finished my first semester of law school, and my gynecologist told me it was a simple in-office procedure. I picked up my cervix-dilating medicine at the pharmacy and followed the instructions exactly. I had also asked my doctor about pain meds for the procedure. She said none were necessary but I could take something of my own if I wanted. I brought an old bottle of Vicodin.
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”Inspire Santé”, “Hope Dealer,” and “Patients are people.” are all trademarks of ours. They stem from our founder Erin Jackson’s personal retelling and writing of her experience with pelvic pain. Words matter, and these are hers and ours. Don’t steal; it’s bad karma, and we’re trying to do good. If you use them, attribute them.
